Although a rare disease, there are a number of reliable resources available regarding aHUS.
It is important however to talk to a qualified aHUS specialist regarding any aHUS-related medical questions you may have.
Australian Government Fact Sheet: Australian Government Subsidies for Medicines
For helpful links to associated local organisations and international aHUS patient groups, visit:
Kidney Health Australia
Rare Voices Australia
UK aHUS support
The Foundation for Children with Atypical HUS
Spanish Association for Atypical Hemolytic Uremix Syndrome