The Hon. Tony Smith MP to plead the aPSGA’s case in the corridors of power – November 30, 2015

A year has passed since seven year old aHUS patient, Ashley Grey, Melbourne, was granted access to government-subsidised Soliris (eculizumab) through the Pharmaceutical Benefits Scheme (PBS) Section 100: Highly Specialised Drugs Program (HSDP). Ashley received his last subsidised dose of the life-saving medication on Thursday, November 26, 2015. His mother...

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Donation #1647

In support of one of our staff members, Rebecca Grant, who, in spite of her condition, has done an outstanding job for the business. We wish aPSGA and Rebecca all the best for the future and thank aPSGA for making it possible. 

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Doctors, not Government, should determine patient access to life-saving Soliris: a mother’s perspective – September 13, 2015

In October, 2012, Holly, now 10, Melbourne, was diagnosed with the often devastating, ultra-rare blood disease, aHUS. He only treatment option at the time was plasma exchange. For the eight months following her diagnosis, Holly’s mum, Linda, watched helplessly as her daughter lived with a catheter in her stomach, and...

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SMH – Trans-Pacific Partnership: Health groups say TPP will cost lives – October 6, 2015

The Trans-Pacific Partnership, or TPP, sets up a free-trade zone for forty percent of the world’s economy, and is considered the most ambitious trade pact in a generation. However, health experts are warning that the agreement, which was signed by 12 pacific-rim countries overnight, including Australia, could lead to “needless...

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