aHUS & double lung transplant patient rejected by ‘ERG’, CAIRNS – Dec 15, 2015

Since receiving a double lung transplant for cystic fibrosis in 2013, medical receptionist Sarah, 29, Cairns, has been battling the ultra-rare blood disorder, atypical haemolytic uraemic syndrome (aHUS). On December 17, 2014, following kidney failure after a trial period off her regular maintenance therapy, Sarah received subsidised access to Soliris...

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Dummy group of undisclosed “experts” guillotining terminally ill patients’ treatment access before Christmas – MEDIA RELEASE – December 7, 2015

Dummy group of undisclosed “experts” guillotining terminally ill patients’ treatment access before Christmas An ‘Expert Reference Group’ (ERG) recently established by the Federal Health Minister to assess ongoing applications for a life-saving medication has rejected its first patient, leaving her to face an almost certain death.  Sarah Mulligan, 29, Cairns,...

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The Hon. Tony Smith MP to plead the aPSGA’s case in the corridors of power – November 30, 2015

A year has passed since seven year old aHUS patient, Ashley Grey, Melbourne, was granted access to government-subsidised Soliris (eculizumab) through the Pharmaceutical Benefits Scheme (PBS) Section 100: Highly Specialised Drugs Program (HSDP). Ashley received his last subsidised dose of the life-saving medication on Thursday, November 26, 2015. His mother...

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Donation #1647

In support of one of our staff members, Rebecca Grant, who, in spite of her condition, has done an outstanding job for the business. We wish aPSGA and Rebecca all the best for the future and thank aPSGA for making it possible. 

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Doctors, not Government, should determine patient access to life-saving Soliris: a mother’s perspective – September 13, 2015

In October, 2012, Holly, now 10, Melbourne, was diagnosed with the often devastating, ultra-rare blood disease, aHUS. He only treatment option at the time was plasma exchange. For the eight months following her diagnosis, Holly’s mum, Linda, watched helplessly as her daughter lived with a catheter in her stomach, and...

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