Four-weeks following a kidney transplant, aPSGA Treasurer, Debbie Basham says she is recovering well.
“Post-transplant, it’s all going well, and so far there have been no signs of organ rejection and no signs of aHUS.
“So far, everything has been good. They’ve done a few biopsies as the kidney took a few days to kick in, and my creatinine spiked slightly at one point, so they’re being very cautious,” said Debbie.
Tuesday, February 9, 2016 marked four weeks since Debbie received a donor kidney. Now on the road to recovery, she’s starting to feel like her old self again.
“For the first two-weeks, I was so nauseous and sick all the time. It was a big adjustment to get used to the new medications.
“But I’m four weeks in now and beginning to get on top of things,” Debbie said.
“It’s funny, as the four-week mark approached, I was feeling really nervous and edgy, because it was really the first marker for me.
“Prior to week four, I had to go to the hospital every day. But from now on, I only have to go three days a week, and I feel like I’m just going through the motions now, to ensure everything is okay,” Debbie said.
Typically, kidney transplant recipients will be monitored post- transplant for eight weeks. However, given Debbie is living with aHUS, she is uncertain as to when she will be allowed to return home to Cairns, Queensland.
“One of the hardest things for me is feeling homesick.
“I’m so grateful to all of the hospital staff in Brisbane, and the specialists for looking after me, and granting me the opportunity to be transplanted. But I am hoping to go home at the end of the eight-week period,” said Debbie.
“My specialist, Dr Murty Mantha, understands the medications I need to use back in Cairns, so I’ll be very happy when they choose to send me back home.”
Post- transplant, Debbie hopes other aHUS patients in a similar situation to her, will be granted access to donated organs, if and when required.
For many of these patients, however, to be given the opportunity to receive a new organ, they must first be granted access to Soliris. Debbie is urging all aPSGA members, their families and friends to continue rallying Members of Parliament, and petitioning for the PBAC to recommend to the Federal Health Minister, that she funds Soliris both pre-and-post transplant, for aHUS patients at its impending March 2016 meeting.
“I personally wrote to my local MP recently, explaining we should not be taking any risks with my new kidney.
“I encourage all aPSGA members to do the same, by reaching out to their local MPs with the same message,” Debbie said.
“I can’t understand why the Government wouldn’t approve the use of Soliris in patients both pre- and post- transplant. The life-saving treatments gets them off dialysis, which ultimately saves money, so my fingers are crossed that they’ll make the right call in March, and approve Soliris for Australian transplant patients living with aHUS.”
To make a last-minute submission to the PBAC before tomorrow – Thursday, February 11, 2016 – urging them to approve Soliris for transplant patients for use both pre- and post- transplant, head here.