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Alexion Pharmaceuticals purchases Synageva BioPharma Corp – May 12, 2015

In a cash-and-stock deal valued at more than AUD$10.5 billion, Alexion Pharmaceuticals purchased orphan drug biopharma manufacturing company, Synageva BioPharma Corp on Wednesday, May 6, 2015. Synageva is currently awaiting approval from the US Food and Drugs Administration (FDA) and the European Medicines Agency (EMA), of its first orphan treatment....

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aPSGA treasurer walks for support of rare diseases

Rare Friends, a community of people supporting family members, friends and people in Far North Queensland living with rare diseases, hosted their Rare Disease Day ‘Fun Run and Walk’ in Cairns on Sunday, February 22, 2015 to raise awareness of rare diseases. aPSGA treasurer, MrsDebbie Basham, who has been living...

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Dr Suzanne Hill to step down from PBAC this March

In news set to shake up the Australian pharma industry, Pharmaceutical Benefits Advisory Committee (PBAC) Chair, Dr Suzanne Hill, will step down from her role following the Committee meeting in March this year. Dr Hill will assume a new role with the World Health Organization – her previous employer where...

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Mid-Year Economic & Fiscal Outlook released, ‘New medicine listings are affordable’ – December 16, 2014

The Mid-Year Economic and Fiscal Outlook (MYEFO) was released yesterday (December 15, 2014) and as forecasted, did not include reference to upward cost variations for the PBS, reconfirming what Medicines Australia has thought for some time – new medicine listings are indeed affordable. Medicines Australia CEO, Tim James, welcomed the...

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Alexion Offers to Immediately Supply Soliris® (eculizumab) To Australian Government for Patients Suffering with aHUS, Despite Not Agreeing to Government-Imposed Restrictions – September 26, 2014

At 3:20pm on Thursday, September 26, 2014 a landmark announcement was made, with Alexion, the manufacturer of Soliris announcing it will immediately make Soliris available to all Australians living with aHUS in urgent need. A huge thank you to Alexion and the Australian Government for subsidising Soliris and helping to #saveaHUSlives. Please...

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Triple Olympian & Gold Medallist champions life for Aussies living with aHUS – September 25, 2014

Today members of the aPSGA, the public and our newly appointed ‘Champion for Life’ Ambassador, Kerri Pottharst OAM joined forces for a set of ‘Pay & play’ charity beach volleyball in a bid to raise awareness of the plight of Australians living with aHUS. Much-loved Olympians and sports people including Kerri Pottharst, her Gold...

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