In an inspiring initiative from New South Wales, a new charity called Little Wings is helping the families of children residing in regional and remote areas of the State battling chronic health conditions, to access much-needed, specialised, city-based treatments. Little Wings works to combat the tyranny of distance and healthcare...
Archives: April 2015
Debbie’s story – Fighting to access Soliris for all Australians in order to qualify for a kidney transplant – April 23, 2015
July, 2015 will mark 12 years since, Debbie Basham, 53, Cairns, was diagnosed with the ultra-rare, life-threatening disease, aHUS. “Back then, so little was known about the disease, that any information whatsoever on aHUS was extremely difficult to find,” said Debbie, who is also Treasurer of the aHUS Patient Support...
Public submissions open to determine the future of the Life Saving Drugs Program (LSDP) – April 17, 2015
The Department of Health has released its issues paper on the post-market review of the Life Saving Drugs Program (LSDP) and is now calling for public submissions from stakeholders (individuals and associations) by April 30, 2015. In its issues paper released last Friday, the expert reference group of the PBS...