Archives: February 2015

The Fight for Soliris in Canada

Michal Eygenraam, 49 was diagnosed with atypical Hemolytic Uremic Syndrome (aHUS) in 2011, which led to kidney failure and reliance on dialysis for eight hours a day, five times a week to stay alive. In 2006, Michaels’ wife, Margriet donated her kidney to him following an incorrect diagnosis. If Michael...

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Treatment a real life-saver – Yahoo 7, Feb 26, 2015

Text by Clare Kenyon February 26, 2015, 7:57 pm Reaching his 101st life-saving infusion, Esperance man Garry Wilson says life is better than ever. It was an unusual milestone for Esperance man Garry Wilson when he went in for his 101st Eculizumab infusion this week. The fortnightly treatment, normally called...

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aPSGA treasurer walks for support of rare diseases

Rare Friends, a community of people supporting family members, friends and people in Far North Queensland living with rare diseases, hosted their Rare Disease Day ‘Fun Run and Walk’ in Cairns on Sunday, February 22, 2015 to raise awareness of rare diseases. aPSGA treasurer, MrsDebbie Basham, who has been living...

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Dr Suzanne Hill to step down from PBAC this March

In news set to shake up the Australian pharma industry, Pharmaceutical Benefits Advisory Committee (PBAC) Chair, Dr Suzanne Hill, will step down from her role following the Committee meeting in March this year. Dr Hill will assume a new role with the World Health Organization – her previous employer where...

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