Archives: December 2014

An early Christmas for Sarah – December 17, 2014

We are excited to announce that aPSGA member, Sarah, 28 from Cairns has received her first government-subsided dose of Soliris (eculizumab) in Cairns today (December 17, 2014). Sarah was diagnosed with aHUS in April, 2014 and ever since has fought, like other aPSGA members, for subsided access to the only...

read more

Mid-Year Economic & Fiscal Outlook released, ‘New medicine listings are affordable’ – December 16, 2014

The Mid-Year Economic and Fiscal Outlook (MYEFO) was released yesterday (December 15, 2014) and as forecasted, did not include reference to upward cost variations for the PBS, reconfirming what Medicines Australia has thought for some time – new medicine listings are indeed affordable. Medicines Australia CEO, Tim James, welcomed the...

read more

A story that is far too close to home; Canadian aHUS patient lobbying government for access to Soliris – December 9, 2014

Toni Vernon, a 59 year old Canadian mother-of-four, is lobbying her provincial government for access to the only treatment that will allow her to lead a normal, active, healthy lifestyle. Her harrowing story echoes the experience of our aPSGA members for most of this year. In an article published in...

read more

Media release – PBS listing grants aHUS patients gift of life – December 1, 2014

Media release MONDAY, DECEMBER 1, 2014  FOR IMMEDIATE USE  PBS listing grants aHUS patients gift of life The aHUS Patient Support Group Australia (aPSGA) welcomes today’s (December 1, 2014) listing of Soliris (eculizumab) under Section 100: Highly Specialised Drugs Program on the Pharmaceutical Benefits Scheme (PBS) for the small group...

read more