Archives: November 2014

Compassionate supply of Soliris to cease following PBS listing – November 17, 2014

Medical receptionist, Sarah, 28, Cairns, had lived her entire life with Cystic Fibrosis (CF) until September, 2013 when she received a double lung transplant. Following transplantation, Sarah visited hospital for weekly blood tests and follow-ups, with a biopsy confirming her treatment had started to compromise her kidney function. While her...

read more

Esme’s story – November 11, 2014

Esme, 5 Little girl living with aHUS granted compassionate access to Soliris, Perth Diagnosed with the ultra-rare, life threatening blood disease atypical haemolytic uraemic syndrome (aHUS) at nine-months of age, Esme, now 5, Perth was privileged to be granted compassionate access to the only treatment that would ultimately save her...

read more