Archives: September 2014

Narre Warren South youngster gets her wish as lifesaving treatment Soliris added to PBS – Berwick Leader – September 29, 2014

Words by Brittany Shanahan NARRE Warren South’s Holly Van De Loop is celebrating the news a lifesaving drug which costs $500,000 a year has been added to the Pharmaceutical Benefits Scheme. The Federal Government has agreed to subsidise Soliris – the drug that treats Holly’s rare blood disorder aHUS (atypical Haemolytic...

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Alexion Offers to Immediately Supply Soliris® (eculizumab) To Australian Government for Patients Suffering with aHUS, Despite Not Agreeing to Government-Imposed Restrictions – September 26, 2014

At 3:20pm on Thursday, September 26, 2014 a landmark announcement was made, with Alexion, the manufacturer of Soliris announcing it will immediately make Soliris available to all Australians living with aHUS in urgent need. A huge thank you to Alexion and the Australian Government for subsidising Soliris and helping to #saveaHUSlives. Please...

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Row over drug listing – September 25, 2014

Text by LACHLAN MOORHEAD BAD blood has developed between the Federal Government and a pharmaceutical company over subsidies for a lifesaving drug. It comes after the News reported in March on concerned mother Linda Van de Loop who was championing for the government to place the drug, Soliris, on the...

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