Archives: May 2014

Community supporting our plea for life – May 13, 2014

We (the aPSGA) have captured extensive media attention over the past week in our unwavering mission to secure fully-subsidised access to Soliris for all Australians requiring the life-saving treatment. We’ve secured some great victories for our members thanks to supportive journalists who have gone into bat for us as well...

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aHUS in the media this week – May 9, 2014

As a result of media coverage generated by the aPSGA over the last few days, Isabelle Ruiz received multiple donations from individuals, small businesses as well as large donation from a CMFEU construction union that allowed her to access a much-needed dose of Soliris. On top of this, Channel 7...

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Media questions government’s sacking of experts responsible for advising government on funding treatments for rare diseases – May 9, 2014

The media has cried foul this week, questioning the Department of Health’s termination of all 20 expert members constituting the five rare diseases advisory committees, with no consultation whatsoever on April 22, 2014, and only days before the PBAC recommended Soliris be funded under Schedule 100: Highly Specialised Drugs Program...

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Government sacks over 20 medical experts from committees advising on drug subsidies – News Corp Australia, May 8, 2014

http://www.townsvillebulletin.com.au/news/national/government-sacks-over-20-medical-experts-from-committees-advising-on-drug-subsidies/story-fnjbnxuj-1226909604559 These are only a handful of stories that have captured Australia’s attention and the ears of Federal Health Minister, the Hon Peter Dutton and our Prime Minister, the Hon Tony Abbott. Let’s continue our plea for life.

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Alexion provides update on Government process to fund Soliris for patients with aHUS – May 8, 2014

Alexion had a constructive exchange of ideas today with senior Department of Health officials regarding Alexion’s proposal to provide immediate and sustainable access to Soliris® (eculizumab) for patients with atypical haemolytic uraemic syndrome (aHUS).  Alexion expects to continue to discuss this proposal. Alexion continued to express to Government the greatest...

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