Archives: March 2014

Tabling of the aPSGA petitions in both House of Parliament today

The tabling of our aPSGA petitions in both House of Parliament today coincided with the release of a positive assessment of Soliris this week by the National Institute for Health and Clinical Excellence (NICE) Evaluation Committee in the UK, which acknowledged the effectiveness of the life-saving treatment for people living...

read more

The Hon. Warren Snowdon MP, delivered a statement in the House of Representatives about aHUS

The Member for Lingiari, Northern Territory and Shadow Parliamentary Secretary for External Territories, Indigenous Affairs and for Northern Australia, the Hon. Warren Snowdon MP, delivered a statement in the House of Representatives before question time today, outlining the number of Australians living with aHUS (70), the aPSGA’s submission made to the PBAC...

read more

Former indigenous Australian athlete and new ALP Senator for the Northern Territory, Nova Peris OAM, delivered a statement in the Senate on behalf of aHUS patient

Former indigenous Australian athlete and new ALP Senator for the Northern Territory, Nova Peris OAM, delivered a statement in the Senate on behalf of Isabelle Ruiz, the granddaughter of her constituent, Mary Meldrum, today. Senator Peris described the life-threatening disease, aHUS and the only treatment available for this disease, Soliris, which is...

read more

Victorian ALP Member for Jagajaga, the Hon. Jenny Macklin MP, delivered a statement focusing on her local 23-year-old constituent, Katherine Marshall, and her family.

Following the tabling of the aPSGA petitions in the House of Representatives today, Victorian ALP Member for Jagajaga, the Hon. Jenny Macklin MP, delivered a statement focusing on her local 23-year-old constituent, Katherine Marshall, and her family. Ms Macklin explained that when she first met Katherine in 2012, she was “consigned to...

read more